As Michele and I were nearly ready to make this website public, I felt very unsettled about something. I kept telling her that I felt like there was something missing. Something very important. This site was started out of our frustration of not finding the right answers, not finding good or knowledgeable doctors, going to the ER and nurses and doctors not having a clue what we dealt with, going to numerous doctors and getting told different things, and on and on I could go. We have now learned that so many adults with EGID's deal with these same exact frustrations.
So here on this page we will hope to discuss in depth what we feel like is missing between the doctor/patient relationship when it comes to our disease. We hope to help educate doctors on what we feel is missing in our treatment. We have great hopes for this page but please be patient with us as we want to make sure that what we put here is done in a correct manner.
It takes each individual link to complete a chain...and our hope is to have a complete chain when it comes to treatment for us. Our hopes are that one day there will be no need for a page titled "The missing link".
So here on this page we will hope to discuss in depth what we feel like is missing between the doctor/patient relationship when it comes to our disease. We hope to help educate doctors on what we feel is missing in our treatment. We have great hopes for this page but please be patient with us as we want to make sure that what we put here is done in a correct manner.
It takes each individual link to complete a chain...and our hope is to have a complete chain when it comes to treatment for us. Our hopes are that one day there will be no need for a page titled "The missing link".
